Our miracle was born 12/29/00 weighing 8 lbs. 4 oz.

We found out about Brandon’s heart defect at our nineteen-week ultrasound and were immediately sent to a pediatric cardiologist who confirmed the findings of HLHS. We were given three options…heart transplant, three-stage surgery or termination. We were devastated…no one we knew had ever heard of this rare yet severe heart defect. We spent weeks researching HLHS, talking to doctors, surgeons, pediatricians, websites, friends, family and finally made the decision to have the three stage surgery and to put all of this in God’s hand’s, we prayed for the best and prepared for the worst.

After thee open-heart surgeries – his first when he was eight days old, his second at six months and the third at three years old along with many long and difficult roads and a journey that will never end, we have a beautiful, happy little boy that is so full of life and is truly a gift from God.

We have no idea what the future will hold but we cherish every moment with Brandon, have learned to live life one day at a time and to enjoy each minute of it.

We have also met many wonderful people along this journey we call HLHS from the cardiologists, surgeons, doctors and nurses to the friends we call ‘Hearts of Hope’ without out their love and support I don’t know how we could have gotten this far, we have learned that this devastating congenital heart defect has come with many wonderful things.

Brandon is six years old, he will start 1st Grade in the fall. He is full of life and has non-stop energy. He enjoys swimming, riding his bike, playing computer games and loves his big brother Nick.

We are blessed…

-Julie and Dan (Brandon's parents) and big brother Nick